This event is to help raise funds for one of our wonderful families. Every penny received will be going to the family.
Oliver, who has recently been diagnosed with CLN1 Batten’s Disease, a rare, life-limiting genetic condition, just a few weeks before his second birthday. His parents' world has changed overnight. This condition affects the brain and nervous system, and over time, it will slowly take away the skills Oliver is just beginning to discover—his ability to play, to learn, to communicate, and to experience the world in the way every child should.
His family are already starting to see those changes, and it is heartbreaking to watch. Oliver has always been drawn to bubbles, lights, and all things sensory—simple moments that bring him so much joy and comfort. As his needs change, his family want to create a safe, calming sensory space at home where he can continue to feel happiness, peace, and a connection for as long as possible. They are also expecting a second baby very soon, and more than anything, they hope to create a space where both of their children can share special moments—moments they will cherish forever and be remembered with just photos and videos in the future.
They will also require other specialist equipment as well as the financial burden the parents will face.
By putting on this event we aim to help as much as we can.
Words provided by Brierley Hill Babybank
| Koszt | ||
|---|---|---|
1st Child attending the session
All bookings need one of these.
|
£7.50 | |
Sibling ticket - only to be used with a 1st child attending |
£3.75 |
1st Halesowen Scout Group
The Scout Centre Elizabeth Road
Halesowen
B63 4BG
